blake's purpose

Fighting juvenile Batten Disease

About Us

We are an NGO that helps people affected by Batten Disease since 2000. We host many events to raise awareness about Battens disease and give support to people affected by it. We organize fundraising events to help advance research.

BP was established to help eradicate Batten disease.

We have many volunteers and community leaders who help us accomplish our mission to raise funds for research to find a cure for juvenile Batten disease, and we are very grateful for the time and effort they have given us. If you’d also like to volunteer, you can send us a message here.