Spring is here…

Wanted to update everyone and apologize for taking a while to do a journal entry.  There have been a lot of changes in our personal lives and first and foremost our biggest challenge every day is making Blake’s life as comfortable as we can.  Blake just came off of spring break and will return to school tomorrow.  It’s so hard for me to write about his physical progress cause I am noticing some deterioration with his muscle tone.  We still get smiles out of Blake although not as frequently and he still surprises us with those magical days at school while other days he is very quiet.  Seizure control is still good and he remains able to swallow without too many problems.  I wish I knew what goes on in his head but I must say I think he is content right now.  I don’t think Blake will return to China but I must say that I do believe his 2 trips to China have made a big difference in the progression of this disease.  Will try to blog more frequently in the upcoming months.