We ran a couple of tests today and they all came back fine and Blake is tolerating his feeds fine over the last 24 hours.  We are going to add Neurontin tomorrow because they feel this may help him and see how it goes.  He was coming back to life this afternoon so we are hoping for the best and that he will be coming home soon.  If he tolerates his feeds over the next couple days then we will hold off on doing the nissen fundoplication which I hope we can avoid all together.

I just wanted to update everyone that Blake was admitted in the hospital today.  Again it is all because of his throwing up and not being able to figure it out.  It is too much for Blake to handle and this morning we went to see his GI and she then scoped him and ran some blood tests.  He has irritation in the esophagus and also his white blood cell count was almost double.  He will be staying in and having a bunch of tests ran so we can see if a nissen needs to be performed or if there is another reason why this is happening.  It is not fair to Blake that he has to go through this and we worry about him aspirating.

Jeremy is there with Blake and I will be returning in the morning.  Our GI was nice enough to put us in the PICU so Blake could be monitered closely and he has his own room.  He seems to be doing fine right now.  I will update and let everyone know more tomorrow.

For the most part Blake is still stable but we cannot get this throwing up figured out.  We are still feeding him through the J port at night and through the G port during the day and I think every day we are battling a little bit of throwing up.  We are going to try starting tonight for the next week to give him all of his feeds through the J port and if this works then we will have to consider doing another surgery to permanently place a J-tube and discontinue using the G-tube.  I am not sure if his stomach is that sensitive to his meds or he is just not able to digest foods.  Blake’s Dr. ordered a chest x-ray which he did today so we will get the results back tomorrow to see if anything else could be going on.

Things are moving right along with our preparations for the golf tournament.  So far we are on track to make it a great event.  We have a researcher who will be there to share her great progress thus far and hopefully we will have some more news in the months to come.

Just wanted to share a couple of pics of Blake in his stander and baby Samuel loves his sister.

Just a short update as we had such a hectic day today.  It was family picture day and our photographer came to us.  Sam skipped his nap, Talia was trying to fall asleep and Blake wasn’t smiling a lot but he looked really good.

I am putting on a pic of Talia from her last photo shoot.

So it’s been a 3 weeks since I posted but wanted to say that things are going OK.  Blake had his procedure to have the G/J tube placed and it was not going so well the first couple of days.  At night he would start wretching and dry heaving.  On father’s day Blake went back under so radiology could make sure everything was placed properly and it was.  For those who don’t know the J tube allows his feeds to bypass his stomach and go directly into the intestines.  The solution was to use these venting bags and it has worked.  Also they did a culture and Blake was still positive for the H Pylori which could still be why he was throwing up.  He is being treated with the antibiotics for a total of 30 days. 

Blake has been in the swimming pool alot since it’s been pretty hot over here.   He loves it.  He still has that beautiful smile on his face all the time.  One thing he is doing that sounds horrible is grinding his teeth.   Not sure what that is all about.

I didn’t have any recent pics of Blake so I posted one of Samuel and his soon to be Aunt Jessica.  We have been using the video camera more often so need to get the camera out. 

Just wanted to update everyone and say how good Blake is doing this week.  We have been putting him in his walker and he is now standing up straight.  He used to lay his head down and needed support with a boppy pillow.  Jeremy and I are going to be making arrangements to take Blake back to China but we have to coordinate it with some things with work and try to avoid the Olympics. 

Also if anyone has any items they would like to donate for our silent or live auction coming up in October let me know.  We just got all of our folders with all the info done so we are looking for any donations for the event so we can make it bigger and better than last year.

I just posted and wanted to say that Blake is doing well today and send a picture of him smiling.  He is still a bit weak as we are just getting him back on his food instead of pedialite but expect by the end of the weekend he will be doing great.

Well it’s been a busy month so I apologize for not keeping everyone updated.  Samuel and I were in Ohio for a week visiting my sister and best friend so just now getting back into the routine of things.  Blake was doing really well and then last week he got aspiration pneumonia.  We got him on antibiotics and kept him at home as we didn’t feel that he was at a hospitilization point.  Yesterday he started to get better and today he looks really good.  I have been getting tons of smiles from him.  He missed the week in school so I am happy to know that he will be back next week.  I think he really enjoys it.  We have also decided that we are going to go through and do another surgery and have a J-tube placed along with the G-tube.  We have struggled for too long with Blake throwing up and this will bypass the stomach and hopefully eliminate some of the throwing up and not worry us so much with aspiration. 

We are still considering China this summer.  We are going to make our final decision after the surgery.  I want to make sure Blake is strong and doing well to make the journey.  I have a few things to factor in also and that is the Olympics in Beijing as that probably wouldn’t be the best time to travel.

We are working on this years golf tournament and have added a couple new people to our committee.  The tournament is set for October 17th and we hope it will be as successful as our last one.  
  I am posted a few pics that I have finally downloaded.

It’s been a while since I posted because Samuel and myself were back in Ohio for a week and I have been doing some more research to determine if we will go back to China this summer.  I am unsure of which procedure we are contemplating but are thinking about going to a different hospital called Navy General in which they will drill 2 holes in the brain and implant embryonic stem cells.  There have been 9 children to date from other countries who have been and the MRI’s have shown some improvement of the children who have had multiple treatments.  We will be making a decision here soon.Up until yesterday we had a good run of no vomitting but then Blake started again last night.  It is really a frustrating thing to watch and it is so out of our hands because there is no rhyme or reason behind why it’s happening.  Blake has been really active and looks great though.  I had to go to his school today for a meeting and when I came into the classroom he was in the walker taking big steps across the classroom.  That was great to see. 

Things have been a little quiet on our end after Easter but wanted to let everyone know that Blake is doing well.  He is still doing really well with his neck and trunk strength.  He can even sit on his own for small periods again.  As far as the throwing up we went since last Friday with none and then he threw up in the middle of the night.  So not sure what is going on with that.  We are trying everything imaginable.   He is doing alot better but we would like to get it to stop all together.  We think he has even put on a couple more pounds.  We temporarily stopped the acupuncture to try this new technique called Bowen therapy.  It sends signals to the brain and while doing it you cannot do acupuncture.  So we will see what happens. 

Tonight we have our first meeting for our 2nd Annual Fundraiser.  We are going to try to make it bigger and better than last years.